Wellbeing in Long-Term Conditions Research Development
The Wellbeing in Long-Term Conditions Research Development Group
is a new and rapidly expanding team within the Faculty of Health
and Social Care.
The aim of the group is to undertake and disseminate high
quality research studies which have distinct relevance to clinical
practice. We work nationally and internationally in collaboration
with public representatives, charitable organisations, partner
academic institutions, clinical colleagues and industry to achieve
We have a particular interest how behavioural management
principles can be utilised to support people with long-term skin
conditions to self-manage as effectively as possible.
Steven Ersser: Dean of the Faculty of Health and Social Care and
Professor of Nursing and Dermatology Care.
Sue Beacock: Associate Dean Learning and Teaching
Dr Fiona Cowdell: Senior Research Fellow
Tracey Heath: Lecturer, Director: Centre for Leadership,
Innovation and Change through Knowledge Transfer (CLICK)
Dr Lesley Hughes: Senior Lecturer
Jane Wray: Senior Research Fellow
Jill Brooks (Proctor & Gamble Studentship)
Dr Helen Farasat, Senior Lecturer, School of Health and Social
Care, Bournemouth University Dr Rod Tucker, Community
The Eczema Education Programme
We are working with colleagues at Bournemouth University to lead
a collaborative evaluation of the Eczema Education Programme. This
programme seeks to improve the education of parents of children
with atopic eczema.
The Programme is led by the St John’s Institute of Dermatology
at the Guy’s and St Thomas’ Hospital Trust. In conjunction with
Lambeth Primary Care Trust, the initiative and study is being
rolled out across the borough. This is one of the largest eczema
education programmes in Europe, involving up to 750 parents across
53 health centres, and is nurse led.
The evaluation team is examining the patterns of referral and
areas such as the impact of child quality of life and parental self
efficacy. The project involves the development, testing and
finalising of the Parental Self-efficacy in Eczema Care Index
(PESECI). The evaluation work is being led by Professor Steven
Ersser with support from Dr Helen Farasat.
The programme and evaluation are supported by a grant of
£345,000 from the Guy’s and St Thomas’ Charitable Trust.
The EEP Programme is led by Karina Jackson, Consultant Nurse,
St.John’s Institute of Dermatology London and the evaluation is led
by Professor Ersser, with the assistance of Dr Helen Farasat,
Visiting Research Fellow, University of Hull and Senior Lecturer in
Children’s Nursing, Bournemouth University.
The Person–Centred Dermatology Self–Care Index – A new tool for
The Person–Centred Dermatology Self–Care Index (PeDeSI) is a
validated tool we have developed to help clinicians to make a
systematic and accurate assessment of the education and support
needs of adults with long–term skin conditions to enable them to
self–manage as effectively as possible.
It has been developed by Professor Ersser and Dr Cowdell in
collaboration with patient representatives and colleagues from
practice and industry and has been extensively tested in clinical
The Index has ten items and should be competed with patients to
enhance the concordance process. The index is accompanied by a user
guide which provides instructions of how it may be used most
The Person–Centred Dermatology Self–Care Index – Going
To maximise access to the PeDeSI an academic team led by Dr
Fiona Cowdell has worked with Cotoco, specialists in digital
technology and Julie van Onselen, Independent Dermatology
Specialist Nurse, to develop web-based support materials
specifically to develop people’s competence and confidence to
manage their skin condition.
This enhancement has been largely funded by the Technology
Strategy Board. The software toolkit is an innovative way to
deliver personalised information that can be used by patients
wherever they are. The toolkit can also be used by healthcare
professionals, who may not be experts in dealing with the specific
condition. This system will have the capability to be used both on
The web-based toolkit is designed to take the user on a journey
that starts with improving understanding of their condition,
through practical day to day management of it, and culminates in
producing a personalised action plan. A recent feasibility study
investigated the impact the toolkit using pre and post PeDeSI
A significant improvement in ability to self-manage was detected
and with about half of participants (45.3%) reporting it had made a
difference to how they manage their condition. This feasibility
study showed promising results which require further testing in
The group are now updating their Cochrane Review on
Psychological and Educational Interventions for Atopic Eczema in
Children (lead Professor Steven Ersser) and are planning to
complete a Cochrane Review assessing of the Effects of Skin
Cleansers Versus Soap and Water on the Skin Condition of Older
People in Hospital and Residential Care Settings (lead Dr Fiona
We are building our programme of research and are currently
seeking funding for a range of studies focusing on:
- Behavioural change for wellbeing
- Skin health & skin integrity
With particular emphasis on
- needs assessment
- intervention development
- service delivery strategies
Our staff have active links with many key external organisations
- North & East Yorkshire and Northern Lincolnshire
Comprehensive Local Research Network, Regional Dermatology
- The Centre for Evidence Based Dermatology, University of
- British Dermatological Nursing Group · United Kingdom
Dermatology Clinical Trials Network
- St John’s Institute of Dermatology, King’s College London
(Professor Ersser, Visiting Academic)
- Division of Nursing and Dermatology, University of Cape Town
(Professor Ersser, Honorary Professor)
- International Skin Care Nursing Group (Professor Ersser,
Founder and Chair 1999-2010
- Cowdell, F. 2011 Older People, Personal Hygiene and Skin Care
Med-Surg Nursing 20(5), 235- 240
- Cowdell, F. 2010 Promoting skin health in older people Nursing
Older People 22(10), 21-25
- Cowdell, F. 2010 Self-managing skin conditions GP on-line
- Cowdell, F. 2009 Quality of Life and Self-Management in
Psoriasis MIMS Dermatology 5(3), 15-17
- Cowdell, F. 2009 Care and Management of Pruritus in Older
People Nursing Older People 21 (7) 35-41
- Crickmore, D. Wray, J. 2009 Education and training for learning
disability practice: Key messages from contemporary literature,
Journal of Intellectual Disabilities 13 (4) 291-304.
- Ersser, S. Cowdell, F. Latter, S. Nicholls, P. Healy, E. 2011 A
randomised pilot controlled study to examine the feasibility of an
educational nursing intervention to improve self-management
practices in patients with mild-moderate psoriasis. Journal of the
European Academy of Dermatology and Venereology (DOI:
- Ersser, S. Kaur, V. Kelly, P. Langoen, A. Maguire, S. Nicol, N.
Page, B. Ward, C. 2011. The contribution of the nursing service
worldwide and its capacity to benefit within the dermatology field.
International Journal of Dermatology 50 (5) 582-589
- Ersser, S. Eleftheriadou, V. Whitten, M. Gawkroder, D.
Batchelor, J. Corne, J. Lamb, B. Ravenscroft, J. Thomas, K. 2011
Future research into the treatment of vitiligo: where should our
priorities lie? Results of the vitiligo priority setting
partnership. British Journal of Dermatology, 164 (3) 530-536.
- Ersser, S. 2011 Nurse prescribing, concordance and therapeutic
consultation. British Journal of Dermatology 164 (2) 236-237.
- Ersser, S. Cowdell, F. Healy, E. Latter, S. 2010
Self-Management Experiences in Adults with Mild-Moderate Psoriasis:
An Exploratory Study and Implications for Improved Support British
Journal of Dermatology 163(5) 1044-1049
- Ersser, S. Latter, S. Sibley, A., Satherley, P. Welbourne, S.
2007 Psychological and educational interventions for atopic eczema
in children. Cochrane Database of Systematic Reviews Issue 3. Art.
No.: CD004054. DOI: 10.1002/14651858.CD004054.pub2
- Storr, H. Wray, J. Draper, P. 2011 Supporting disabled student
nurses from registration to qualification: A review of the United
Kingdom (UK) literature. Nurse Education Today
- Wray, J. Aspland, A. Taghzouit, J. Pace, K. Harrison, P. 2011
Screening for specific learning difficulties (SpLD): The impact
upon the progression of pre-registration nursing students, Nurse
Education Today (doi:10.1016/j.nedt.2011.01.021)
- Wray, J. Aspland, J. Gibson, H. Watson, R. Stimpson, A. 2009
Wealth of Knowledge: Findings from the employment experiences of
older nurses, midwives and the NHS project. International Journal
of Nursing Studies 46 977–985
- Wray, J. 2009 Complementary and alternative therapies in Oxford
Handbook of Learning and Intellectual Disability Nursing Gates, B,
Barr, O. (eds). Oxford: Oxford University Press
- Wray, J. Aspland, J. Gibson, H. Watson, R. Stimpson, A. 2009
The working experience of older nurses and midwives in the NHS. in
Chiva, A. Manthorpe, J. (eds) Older Workers in Europe, Maidenhead,
Berkshire: Open University Press.
- Wray, J.2009 Gentle Teaching. in Oxford Handbook of Learning
and Intellectual Disability Nursing Gates, B. Barr, O. (eds).
Oxford: Oxford University Press
- Wray,J.Walker, L.Fell, B. 2008 Student nurses’ attitudes to
vulnerable groups: a study examining the impact of a social
inclusion module, Nurse Education Today, 28, 513-520.